Tuesday, January 6, 2015

Our Christmas Newsletter

Christmas, 2014
From New Journey Farm Nestled in the Rolling Hills of Blue Mounds, Wisconsin

Just before Christmas and after this newsletter went to print,
Sabine fell while hiking and cracked her femur. After two
weeks on the couch with a walker she sees her Orthoped
tomorrow. We are hoping and praying all has been
mended!
Another year of amazing changes! The saying that stayed with us this year came from our summer family get-together, “Life doesn’t have to be perfect to be wonderful!” Sabine’s mom, Charlotte, is still doing great in her 90th year, Sabine continues to fight her cancer and David is still the best dialysis nurse ever. Thankfully, for the last half of this year, Sabine has been on oral chemotherapy and avoided the twice-weekly IV infusion lab. She begins her 8th year fighting this nasty blood cancer in January.

At the end of 2013, we built a dialysis room in Charlotte’s basement and put the cottage in Mazomanie up for sale. We were fortunate to have it sell within a few months but vowed to always avoid moving in winter at all costs (thanks Josh and Rachel!).

Sabine’s piano lessons went on the back burner as she suffered a chain of injuries including falling down the hay chute in their barn. The time was quickly filled up with trips to Lake Lawn Lodge, Lake Ripley, a local spa, Minneapolis, and an over-night at “Headless Woman” B and B in Fennimore. She found the best rehab was playing disc golf at courses we came across (including one in Dubuque).

Granddaughter Gracie and her mom, Heather, made their usual winter trek and David and Gracie found a frozen lake is the very best place to fly their kites (no trees!). They also joined us in the summer with Gracie’s sister, Heather, when Niece Teak and daughter Malea came for a visit. Everyone was introduced to Mallard’s baseball on the coldest day of the summer. On our new 6-hole disc golf course the game became a new field of family battles.

The remainder of the Couper clan made it out in June. Cut-throat games of not only disc golf filled the days (and nights), but also competition in bowling, archery, and kayaking the Wisconsin River.

David was thrilled by the summer farm projects after three decades of waiting for the outbuildings to be painted and new fencing installed.  Then they got a notice that this was the year they must harvest timber according to their Managed Forest Program they enrolled in over 30 years ago. After consulting with a forester and having their plan approved by the DNR, they decided to have the logging done by draft horses! They said it was an amazing sight to see them working. Hopefully, the logging will be done by Spring.

The longest and farthest they travelled this year was up to Mackinac Island in the Upper Peninsula. They took to ferry from Manitowoc to Luddington. David was disappointed that Sabine didn’t schedule a dialysis center while travelling Lake Michigan. They attended a weekend dance workshop with sister Barbara and Ken at the famous Grand Hotel. No motor vehicles are permitted only horses and bicycles! The four of them danced and biked around the island and had amazing meals at the hotel.

The really exciting news from New Journey Farm came at the end of summer when David forged a new retirement plan and bought an older 32 foot river boat which was berthed in nearby (a one hour drive) Dubuque, Iowa, called “Kokomo.” Remember the Beach Boys song by that name? They took a lot of trips to Dubuque this fall and their boat was the last one out into dry dock on a cold, windy day in November!

This fall, David has been taking some on line power boat courses to get him acquainted with a larger, twin engine craft.  I think we will know where to find David this summer. Rainer and Rannae were visiting with them when they closed the boat deal. David thought he saw a boat-glimmer in Rainer’s eyes. Hmmm.

With all the police use of force problems that erupted this past year, David’s blog has never been more active. Along with his blog “Improving Police,” he has written op-eds, given interviews and publicly lectured. His book, “Arrested Development,” and his work was highlighted on the national Rachel Maddow show. It’s been an exciting year for our nation’s police. Pray for major changes.

Sabine and David’s church life continues to be centered at St. Peter’s Episcopal Church about 90 miles east of the farm. David leads Sunday worship and does a couple of book/Bible studies each year. Sabine did a great job leading three of our youth through Confirmation and manages a one-room Sunday school each week. It seems to re-energize them for the week to come. They also managed to squeeze in dance lessons at Arthur Murray’s this fall.

In this Christmas letter, they have often in the past shared what their kids were up to – but they didn’t have time to do so because they are so busy themselves. Their kids will simply have to start writing their own letters.


David and Sabine noted, “Well, that was our year and, remember, it all doesn’t have to be perfect to be wonderful.” David and Sabine send their love and blessings to all of you and those whom you love. They ask your prayers for peace around the world, a cure for the Ebola plague, and an end to economic and social disparity. While celebrating the birth of Jesus, and as Cosmologist Dr. Steven Hawking reminds us, “Where there is life there is hope!” -- From The Hill Scribe

Wednesday, December 24, 2014

CRACK! Just What I Feared!

Never a dull moment around here. After Sabine's fall and ER run on Saturday morning (and the ER doc's reading of her hip X-ray as "no fracture) we thought we were pretty lucky. However, Sabine's leg pain persisted (even with a walker and plenty of rest) so that I took her to her primary care clinic yesterday afternoon following our appointment with Dr Sheehan our oncologist (who also suggested we take another look at the hip).

Suspicions confirmed. Sabine has a cracked femur near the ball joint of her right hip. Prognosis? Bed rest and no unnecessary movement.

So I will be moving all the dialysis equipment from Buddy's house down to ours. We will set up our dialysis clinic in the living room!

We have an orthopedic visit to UW clinics the first week in January.

Time to think healing and, I'm afraid, no dancing on New Year's Eve!

Time to reset for a "new normal" and simply be grateful the damage was not greater and also to note that we are beginning our 8th year of fighting cancer.

This day of Christmas Eve we count our blessings (instead of sheep!).


Monday, December 22, 2014

Whoops! I Spoke Too Soon



On the trail n Governor Dodge State Park north of Dodgeville, Wisc.
Just when we thought it was okay to go back into the "water".... Sabine fell in Gov. Dodge Park during our morning walk on Saturday. I thought she broke her hip. After an ambulance ride from the park to the Dodgeville hospital and 6 hours in the ER she was good to go; that is, no fracture seen. But she could not walk, so it's wheel chair and walker time at New Journey Farm.

We will be doing a follow-up this week when we visit Dr Sheehan tomorrow. In the meantime, it's pretty slow moving around here (and my continuing worry that this seems pretty major for a bruised muscle. Thankfully, a radiologist will be reading the x-rays. (Needless to say, I was quite relieved at this diagnosis... I was sure she had a fracture.)

ER at Upland Hills Hospital in Dodgeville
We missed church on Sunday, but are prepared to do Christmas Eve at St Peter's tomorrow. We have family arriving and I have to admit I am not quite up for crowds right now!

I am still able to transport Sabine up the hill for dialysis but worry about what I will do when the snow flies and I can't get a vehicle into our yard (which avoids the stairs).

But one step at a time.

Praise the Lord and pass the ammunition!
Back home hobbling around

Friday, December 19, 2014

CATCHING UP: Ending Another God-given Year

They are English Suffolk-Punch draft horses. They drag the logs down the hill and into the donkey pasture.
I have always said on this blog (or if you see me personally) that NO NEWS is good news when it comes to this business of FIGHTING CANCER!

My last post was in September after we had another one of those fabulous Couper reunions.

Since that time we have moved to an oral chemotherapy which is much easier on Sabine than the twice weekly IV chemical infusions at the hospital.
Girls' disc golf team: left to right: Heather, Teak, Heather R., Malea, Gracie, and Sabine.

The latest excitement on New Journey Farm is fulfilling our contract with the DNR according to our Managed Forest Plan. Thirty years have now passed and we are required to submit a logging plan. We decided to have the loggers use horses rather than mechanized equipment in our woods. What a lovely sight.

Sabine and sister Barbara sitting on a log (recently harvested!)

During this summer's family reunion, we rented the wiffleball field at Rookies near Mazomanie.
In spite of a few falls: one by ambulance after a fall on our sidewalk one evening and another one crashing down the hay chute while trying to push a sticky hay bale down for the donkeys! Needless to say, I think all of this was more taxing to the caregiver than Sabine. Nothing like those ER visits!

But all now is recovered after a few months of physical therapy. It certainly did not slow her down with her daily exercise regimen.

It was seven years ago this month that the cancer came on. Sabine's prognosis was not good... first about two years... then we had five... and now we are beginning our 8th year and looking forward to some Florida sunshine at the end of January.

Sabine recently was asked to talk to a group of medical students about her experiences as a cancer and kidney patient. I heard she did a great job. After all, she is truly the Energizer Rabbit.

We bought a used boat late this summer and are looking forward to a lot of river cruising with our trusty dialysis machine. We keep "Kokomo" (that's her given name) at a marina in Dubuque that is only 60 minutes from our farm.

During a late fall run on the Mississippi south of Dubuque with friends Jeff and Bonnie.
The blessed time of Christmas is just around the corner. Sabine is active with me at St Peter's Episcopal in North Lake between Madison and Milwaukee. She helped me prepare three of our youth for confirmation this summer and did a wonderful job. Now it is the time of the Nativity play for them which range teenagers to pre-schoolers.

At this time, I just want to give thanks for everyone's prayers and support through the years. Loving helps all of us and it is the loving prayers (and good thoughts from our less-than-believing friends) that we are sure have made the difference.

I thank God for Sabine in my life. Remember dear friends what Sabine says: "Life doesn't have to be perfect to be wonderful!"

Happy and Merry Christmas to you all!

Monday, September 1, 2014

Summer Dreaming

This past summer has been a busy one with another large family reunion in July.

On the medical front, we have had a change in the chemo routine -- seems like a bit of an experiment last month when our oncologist suggested we try a "softer" approach after a number of months with twice weekly IV infusions of carfilzomib (plus dexamethasone). So, for the past month Sabine has been on 5 mg of daily Revlimid (lenalidomide) plus 40 mg of dexamethasone weekly.

We had an ER scare last week the day after Sabine had another hospital procedure to clear the veins connected to her fistula. The day surgery procedure went well but the following day she came down with temperature and cough. Fearing a blood infection, we were told to get to the ER and after tests got home around midnight, six hours later!

This weekend we got the numbers back from the first month of this regimen and they look mighty good (25.3!). This new, softer protocol has keep her lambda light chain numbers and ration down to a "normal" range.

We will see what our oncologist has to say on Wednesday. In the meantime, life remains good as we are now over half way through our seventh year!

To this, we give God thanks!