Wednesday, August 31, 2016
Nevertheless, we try and make "lemonade." I do some internet work for my blog and this coming semester at UW-Platteville. And then there is one of our more popular lunch restaurants a short walk away [I'm the mobile one] called "The Sushi Box."
The reason for Sabine's tiredness and lack of energy this past weeks was revealed in her hemoglobin count 8.2! The good news is that her platelets have increased to sixty-four [they were in the forties last week].
Hoping to make it home by 5 p.m.
One day at a time.
Wednesday, August 24, 2016
Tuesday, August 16, 2016
In the midst of all this, son Joshua and Rachel have their first baby, Alexander Wolf who came in at 9# 11 oz.
Wednesday, August 10, 2016
Tuesday, August 9, 2016
Radiation was again administered on Monday and today (Tuesday). The 5th session (and last in this cycle) will be tomorrow after an afternoon of the first of four weekly infusions (read: in hospital) of the additional chemo drug, elotuzumab, which is a monoclonal antibody. The first administration of this drug is scheduled for a four hour period of time.
So we have a plan to move forward hoping that the radiation will quickly help reduce the cytomoma to reduce her neck pain. Next, the chemo should kick in and we should see the results in about 4-6 weeks with another MRI.
Thanks to another friend, Tony, Sabine was able to take a ride to Dubuque and pose with the pirate girls before they headed back to Michigan and California on Sunday.
With a great sense of thankfulness and accomplishment I post this.
|Dubuque City Marina Basin|
|Getting ready for the 3rd Annual Lighted Boat Parade (we should have won -- our theme was Halloween and we had a pirate on the bow, scary Halloween music and a fog generator which enveloped the boat).|
|Capt Jack and his all-girl pirate crew (in the midst of last week's pain and cancer-scare, some levity was needed!|
|Another shot of Capt Jack (with dreadlocks) and his crew.|
Friday, August 5, 2016
We slept in, I went for a swim, Helene made breakfast for us and then we dialyzed.
So here's the drill ahead:
Sabine's brother, Rainer, is coming on Sunday to help us out and relieve Helene.
Sabine is scheduled for her first of five radiation treatments on successive days except for Sunday. The first round of radiation will end on Wednesday.
On Tuesday, we see Dr Sheehan (Sabine's favorite oncologist) to begin a new chemo regimen which will be a continuation of lenalidomide (Revlimid) and dexamethasone with the addition of elotuzumab which will be administered once a week by infusion at the hospital (a somewhat big change).
Four to six weeks from now Sabine will have another MRI to check on the plasma cytoma which is pushing on her spinal cord at C3/C4.
Great to be home and enjoying the Great Creation which surrounds us.
Thursday, August 4, 2016
We are to have a consult this morning which will provide a way forward for us that most likely will involve radiation therapy on the plasma cytomas on the cervical vertebrae [C3/C4] and a new chemotherapy. So far, so good.
Stay tuned and for all of you out there who forwarded positive energy and/or prayers: THANKS A MILLION.
Wednesday, August 3, 2016
Dialysis this morning and then a PET scan this afternoon that will hopefully tell us what is going on and how much of it. We expect to discuss a way forward, a treatment plan, with our oncology team sometime tomorrow.
If the mass turns out not to be an infection but rather a plasma cytomegalovirus then most likely Sabine will undergo radiation on the "hotspot." We expect that, concurrently, there will be a change in her chemotherapy protocol to respond to this new development.
We will know better tomorrow as to what lies ahead.
Let's have some of those good vibrations coming through postive thoughts and/or prayer!